Another Long Day...
Took Meredith to the doctor and we've decided to watch her and her fever. There's only one med left to use and if they put her on it they will have stick her for blood draws every day. If she were to have too much of the med it could harm her kidneys, not enough and doesn't work...sigh...if it's not one thing it's another.
We will be seeing the surgeon tomorrow morning and will hopefully get a date for early next week. We've been told to expect around 40% improvement...we'll sure take it!
I'm going to bed early tonight, I'm running on almost no sleep and I've got to be careful about that because my migraines will set in hard and heavy and I can't afford them right now...I need to be ok to take care of her.
Hugs to All and again...Thanks for all the tags and emails!
Called the doc about her fever, they aren't happy since it's 5 days post surgery.
We will be seeing them at 10 this morning and they told us to bring a bag in case they choose to admit her.
~Constant Fever~
Little Meredith has a constant low grade fever. Bless her heart, she asks me for a suppository because they make her feel better. She didn't go to sleep until around midnight last night and I dozed off for a bit but was back up at 1am and then finally went back to sleep around 4 this morning.
The pulmonologist called this morning to let us know that he talked to the surgeon that will be doing the surgery and they will be doing it next week for sure.
We go tomorrow to meet with him, it will be somewhat of a relief to get an actual date scheduled.
Thanks so much to everyone that continues to leave us kind, loving and supportive tags and for all the personal emails as well.
Hugs!
Angie
Feeling: Crazy
Meredith woke up with a fever this morning, it's sitting steady at 101. She can't take liquid medicine, says it makes her sick so we used a suppository and hopefully it will come down a bit.
I'm doing laundry, can someone tell me...does laundry have babies in the middle of the night? I think ours does.
I know this pages looks a bit squished but I had to get rid of the scroll bar. I didn't make the pictures of Meredith posted below small enough so I made my blog frame bigger.
Feeling: Crazy
Mantra:
S-Saline
A-Antibiotic
S-Saline
H-Heparin
I've added comments to my blog. I've been to several blogs lately that have them and I like using them so I thought I'd add them to mine too. Guess the real test will be to see if anyone actually leaves them...LOL...it would be sad to add them and then no one ever leave any.
Josh is doing well with his toe. He had the nail removed on Saturday morning and by yesterday he didn't even need any pain meds.
Meredith had a rough night last night. She has been running a low grade fever and just not feeling all that well and I think that's why she couldn't sleep last night. We put her in the bed with us and she did a bit better.
Languages spoken in this office: Spanish, German, Italian
Medical Education: University of Texas Southwestern Medical School, 1986
I like to know a bit about a doctor before I walk into their office. I'm thinking he must really good because all four of Meredith's specialists recommended him as well as her regular doctor.
Oh gosh, how wonderful it would be if she has this surgery and didn't need all those doctors anymore...that's what I'm praying for!
We have an appointment with the Pediatric Surgeon on Thursday morning, we've been told he's the best of the best. I looked up a little info on him:
Internship: St. Paul Hospital, 1987
Residency: Surgical, St. Paul Hospital, 1991
Fellowship: Pediatric Transplantation, Children's Medical Center of Dallas, 6/92
Board Certification(s):
Surgery - American Board Of Surgery, 1992
Pediatric Surgery - American Board Of Surgery, 1998
Feeling: Tired
Mantra:
S-Saline
A-Antibiotic
S-Saline
H-Heparin
1. Bed and Breakfast or hotel? Since we have kids...a hotel
2. What determines where you stay?(i.e. price, accommodations, transportation, travel package) We try to stay at Marriott since we earn points with them.
3. When determining where to stay, do you ever consider the establishment's history? (i.e. it might be haunted, location of high profile crime) No, it's never entered my mind.
4. Would such considerations sway your decision? I don't think I could sleep in a place where there had been a horrible crime.
5. Do you try and read the local paper for where you're visiting, to get an idea of what the area's like? No, but I do look around on the internet for where we are visiting to get an idea of what it's like.
Feeling: Tired
Mantra:
S-Saline
A-Antibiotic
S-Saline
H-Heparin
Sunday Report
Yesterday ended up to be a pretty good day. Meredith tolerated her treatments well, had no fever and didn't throw up at all. Josh's toe didn't hurt and changing his bandage was easy. I don't think it can get any better than that...both of my kids seem to be doing ok for the time being. I'm very grateful for that.
Marc, Meredith and I went to the mall for a little bit. We've been so cooped up and it was nice to get out for a little while. We bought her some t-shirts at the Disney Store to wear as night shirts, we bought a size up and they work well since the sleeves are loose on her. Went to American Eagle and got Josh some new shirts, it's time to start the back to school
shopping. Our last stop was the Godiva store and Marc had them make a box of Meredith's and mine favorite white chocolate candy, he's such a sweetheart.
I'm so excited to have some reads now on my list, I'll be making the rounds shortly!
Meredith has an appointment with the a new specialist this morning at 9am so I'm off here but will post again later with any updates.
Thanks to everyone for all of the wonderfully supportive emails, they help me keep my spirits up!
I snapped a couple of pics this morning while Meredith was getting her treatment.
She's been such a good girl through everything.
Feeling: Sad 
Mantra:
S-Saline
A-Antibiotic
S-Saline
H-Heparin
Whew a Whirlwind Two Days!
Hi Everyone!
We got home late yesterday and I've just not had a free moment to write an entry.
Meredith did well through all of her testing~
All of her sinuses in her head are blocked and full of infection except for one and it's about 25% open right now.
Her ENT & Pulmonologist have recommended her having a Nissen Fundoplication
because most of her problems are directly related to her reflux. We haven't been able to control her reflux and she's on high doses of meds for that right now and it's apparent that they aren't working either.
She's currently getting 5 IV Treatments a day, Rocephin is every 12 hours and the Clindamycian is every 8 hours. The diarrhea is back so we are watching that closely. She's also running a low grade fever and threw up a few times this morning. We aren't worrying about solid foods right now since she has no appetite and are mainly focusing on pushing the fluids through her.
Sooooo...hopefully we'll get the surgery scheduled this week and she'll be there between 4 and 5 days.
On another note, Josh came home today from Scout Camp today and I had to take him to the doctor for his toe. He ended up having the toenail removed because the infection was so bad in his toe.
He's on the couch in the living room with his foot propped up and just took a pain pill and Meredith is at the dining room table getting a treatment. I started everything and Marc is with her now so I could finish this entry that I've been trying to post since early this morning.
I'm tired, we are all tired!
Hug your kids today!
It's 5:30 am my time and we have to have Meredith to the hospital by 8am this
morning to get her admitted. She's scheduled for the CT Scan under
sedation at 9:30 and at the end of the CT Scan her ENT is coming down to look in
her nasal area to check for a polyp that another doctor thinks he might have
seen. If she has one then she'll go back for surgery on next Tuesday.
After they finish the CT Scan she will go and have the PICC Line inserted.
I always get jittery when they do this because she has to be transported through
the hallways from one area to another while she's asleep and it includes an
elevator ride as well. The anesthesiologist stays with her the entire time
but I guess it's just the Mom in me that get's worried.
If everything goes great, which I expect that it will, she'll be in the hospital
overnight and we can come home tomorrow.
We noticed last night that she's having more MRSA Spots on her skin, she's still
alseep so I can't check to see if she has anymore or if they've gotten worse
this morning. We've been told if her system gets weak enough these spots
can turn into abcesses...yuck.
Ok, I'm off to finish getting her stuff ready, be back later.
Give your kids an extra hug today!
It's getting close to July so I re-did things in in patriotic
colors and adoptions, you can find the adoptions in my shoppe if you're looking
for any for your pages.
I know America isn't perfect, no country is. I couldn't
have prouder of our country than when Reagan died and to see everyone come
together from all party lines, different countries, different religions...we all
came together as one...that's what we do in America...we come together as
One...United...Supporting Each Other...how much better does it get than that?
I was sorting Laundry earlier and I looked down to find a
green lizard on my hand...I thought I was going to have a heart attack right
there on the spot...my heart raced for at least 30 minutes and I still haven't
been back over there to sort any more laundry. Marc will have to make sure
the coast is clear before I go back over there.
Rita
sent me the cutest sig tag, Thanks so much sis it really brightened my day! 
It's Monday Right!
Do you prefer....
1. Long hair or Short hair...Medium Hair
2. Contacts or Glasses...Contacts
3. Spring or Autumn...Oh, a really hard choice...I Love both seasons!
4. Mittens or Gloves...Gloves
5. Car or Truck/SUV...SUV
6. Mac or Windows...Windows
7. Cats or Dogs...Dogs
8. Rock or Jazz...Rock
9. Pen or Pencil...Pen...Pink Ink
10. DVD's or VHS's...DVD's all the way!
Monday Madness
My CGF,
Nikki, sent me the cutest gift yesterday from Lynn at Electrik Garden...I love Lynn's work and Nikki you're so wonderful to send this to me! Thanks so much!
When I got up this morning, Nikki had also sent me these cuties from Melissa at Quilter Bee. It brings such a smile to my face to see adorable gifts in my mailbox...Thanks Again Nikki...Love Ya Girl!
My day has started off great, hope your's has too!
Anyone Out There?
I rarely blog at night but I didn't want to let too many days go by without posting an entry.
Tomorrow is Meredith's appointment with her pediatrician. It'll be interesting to see what he has to say about all of her current problems as well as what he will advise us to do going forward.
We have a referral to Allergist/Immunologist and the waiting period is a good while so I'm going to call her pulmonologist to see if he can get her in sooner.
As a side note here, Josh is printing all this stuff on the printer and it's falling down everywhere...the printer is up on the top of the hutch of my desk and it's just raining paper right now!
She did fine with the injection they gave her for the beginning of the immunity testing. They also drew 4 tubes of blood and she never uttered a sound...nothing, she just laid there while they drew blood and then gave her the shot...I was almost bawling but she did great. 
The blood gets sent off to California and it takes two weeks to do all the lab work and then we go back 30 days from when she had the shot and they draw another 4 tubes of blood and send it off. They will compare her blood before she was given the injection to her blood after she had the injection to see how her body is reacting to it.
I'm tired tonight, Meredith didn't sleep last night and neither did we. I ended up sleeping on the couch for a while and then she was crying for me around 3am so she got next to me in our bed and finally went back to sleep about 6am.
It's been a long day here and will probably be another long one tomorrow.
I just realized that my site say's Happy Spring and it's Summer...off to
change it, now to decide what I want to use...I feel Briar Bunnies coming on!
Good Morning!
Woohoo, let me start with the cutest adoptions I got yesterday for the shoppe!
Nikki who happens to be my
CGF for
the month of June made them, aren't they adorable! I'll be adding them
ASAP and I'm sure they will be glad to come and live with you or a friend that
you send them to. Thanks Nikki, Meredith and I love them!
Ok, the doctor wants to put Meredith back on Bactrim but we are holding off
until Friday when we meet with her ped. She's not markedly worse and not
markedly better so we gather she's holding her own right now...with her that
could be good and could be bad...it's hard to tell. We just don't want to
put her on any antibiotics unless we really have to since she has the MRSA,
which she wouldn't have if she hadn't taken so many antibiotics already.
Josh went with Erica last night to work VBS at her church, he seemed to enjoy
that.
The Princess took forever to go to sleep last night, the last time I checked on
her at around 11 she was out...Thank Goodness...she needs her rest.
I'm off to answer some emails since I'm terribly far behind and then going to
cut this gorgeous watermelon we bought yesterday, slice strawberries for
strawberry shortcake and unload the dishwasher...you know...get ready for the
day type stuff.
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